Do you work in the field of rare diseases? We want to hear from you!
The Faculty of Pharmaceutical Medicine (FPM) is undertaking research into the general unmet needs of people living with rare diseases, as well as the specific impact that COVID-19 has had on on their daily lives.
We are asking those who work closely in the field of rare diseases to kindly help complete the following short survey which should only take a few minutes. Please note that we want to hear from a breadth of voices so please encourage your colleagues – whether they be physicians or non-physicians – to submit their responses too.
This work is being led by the FPM Gene Therapies and Rare Diseases Expert Group and will help to inform policy and communications outputs from the faculty.
The survey will run until Thursday 27 June 2021.