This webinar examines the impact that COVID-19 pandemic has had on people living with rare diseases (including access to medicines and research in rare disease). It addresses the following questions:
- What has been the impact on development and access to medicines for people living with rare diseases during the COVID-19 pandemic? What can be done better?
Are people living with rare diseases sufficiently considered in the responses to a Public Health Emergency? What are the unmet needs?
- How can pharmaceutical medicine and the rare disease community continue to foster clinical research and innovation for people living with rare diseases during a Public Health Emergency?
This webinar is part of our series on Preparedness Planning for Public Health Emergencies.
Meet the speakers
Dr Zoya Panahloo, Member of the Ethics & Practice Committee, Faculty of Pharmaceutical Medicine, United Kingdom
- Tanya Collin-Histed, CEO, International Gaucher Alliance, United Kingdom
Professor Huma Arshad Cheema, Paediatric Gastroenterology-Hepatology & Nutrition, The Children’s Hospital & Institute of Child Health, Lahore, Pakistan
- Dr. Heather Lau, Neurogeneticist and Paediatric Neurologist, New York University School of Medicine, USA
- Emily Crossley, Co-founder and Joint CEO Duchenne United Kingdom
This webinar is free to attend
- IMPORTANT: If you are unable to complete your booking online, please email email@example.com and we will book you onto the event.
- This event is approved for CPD.