Special Populations in PHEs (II): Rare Diseases

29th July 2020
16:00 - 17:00

Introduction

This webinar examines the impact that COVID-19 pandemic has had on people living with rare diseases (including access to medicines and research in rare disease). It addresses the following questions:

  1. What has been the impact on development and access to medicines for people living with rare diseases during the COVID-19 pandemic? What can be done better?
  2.  

    Are people living with rare diseases sufficiently considered in the responses to a Public Health Emergency? What are the unmet needs?

  3. How can pharmaceutical medicine and the rare disease community continue to foster clinical research and innovation for people living with rare diseases during a Public Health Emergency?

Preparedness training webinar series

This webinar is part of our series on Preparedness Planning for Public Health Emergencies.

Find out more.

Meet the speakers

Moderator:
Dr Zoya Panahloo, Member of the Ethics & Practice Committee, Faculty of Pharmaceutical Medicine, United Kingdom

Panellists:

  • Tanya Collin-Histed, CEO, International Gaucher Alliance, United Kingdom
  •  

    Professor Huma Arshad Cheema, Paediatric Gastroenterology-Hepatology & Nutrition, The Children’s Hospital & Institute of Child Health, Lahore, Pakistan

  • Dr. Heather Lau, Neurogeneticist and Paediatric Neurologist, New York University School of Medicine, USA
  • Emily Crossley, Co-founder and Joint CEO Duchenne United Kingdom

This webinar is free to attend

  • IMPORTANT: If you are unable to complete your booking online, please email fpm@fpm.org.uk and we will book you onto the event.
  • This event is approved for CPD.

See our Terms & Conditions for booking and please note our privacy policy.

Joining instructions will be sent to attendees no earlier than Tuesday 28 June 2020.

 

If you have any queries, please email fpm@fpm.org.uk.

To find out about sponsorship opportunities for this series please email Will Strange at w.strange@fpm.org.uk