Masterclass | The Fundamentals of Patient Engagement for Pharmaceutical Physicians

Introductions: You will be asked to introduce yourselves and name two projects that you are working on. We’ll aim to highlight blind spots of how patient input might be relevant to your activities. (20 mins)

Paired discussion, coming together in plenary: If you were able to involve a patient (without any hassle) in your current projects, how might that make a difference or improve the activity? (40 mins)

Presented content: (20 mins)

• The history of patient involvement from HIV activists to the present day.
• Fundamental principles of patient engagement:
  • ‘Nothing about us without us’
  • With not for patients
  • Respectful partnership & collaboration
  • Co-creation
  • Spectrum of patients (triangle)

Wrap-up discussion on identifying the value of patient engagement to get buy-in of senior leadership.

15 minute break

‘Perfect Fail’ or myth-busting exercise (45 mins)

Example ‘Perfect Fail’ exercise:

• Step 1: If you really wanted to get patient engagement wrong, what would patients experience when they worked with you?
• Step 2: Can you highlight if there are any things that you see a bit of in your own environment?
• Step 3: What can you do to prevent these things happening?

Presentation on PFMD Quality Standards & examples of good practice (20 mins)

Interactive segment (20 mins)

You will evaluate case studies where projects have been run with a high degree of patient engagement.

Close, and homework

In advance of day two on 29 March 2023, you will be asked to explore PFMD and other resources for elements of relevance to your work.

Welcome back. You will be asked to share with the group any useful resources that you have found since day one of the masterclass.

Presented Content:

• The trainers will share any additional resources that have not been covered already
• Social media
  • How can you champion patient engagement best practices?
  • How can you use digital channels to find patient collaborators?
• Overview of remuneration of patients involved in your projects
• Signposting of the ongoing discussions with respect to the ABPI Code

Individual reflection: What difficulties or frictions do you anticipate encountering that the trainers might be able to advise on?

Ten minute break

Small group exercise: scenarios

You’ll be asked to prepare and present a simple plan in response to a scenario. The scenario could involve hosting a patient advisory board; running a patient review of a study protocol; or seeking patient input into a publication.

This is your opportunity to discuss points which have not been covered and get Trishna and Liz’s experience.

Delegates to consider:

• What would you like to do?
• Do you have everything you need? Do you anticipate obstacles? If so, how will you tackle them?

Feedback invited via online survey